We had an informative and interesting time at the British Sarcoma Group annual conference, which was held at the Royal Armouries in Leeds this week.     Great to see Dr Bulusu presenting an update on SDH deficient GIST from our work at the PAWS- GIST clinic.   .     In a later session […]

We are collaborating with EU-X-CT who are working to find ways to access clinical trials in other countries EU-X-CT is a multi-stakeholder initiative, aiming to improve patient access to clinical trials in a different country, by collecting all relevant information from EU and non-EU countries on the following aspects of cross-border access to clinical trials. […]

On 1st December the third PAWS-GIST clinic of 2023 was hosted at Addenbrookes hospital in Cambridge. As is customary, the clinic was preceded by a welcome dinner on Thursday evening. An opportunity for patients and their families to meet in a relaxed setting, ready to carry-on new friendships the next day.         […]

GIST Awareness Day (July 13th) is just around the corner and we are excited to invite you to join LRG’s interactive webinar with Drs.: John Glod (NIH), Ramesh Bulusu (Cambridge University Hospitals), Jason Siclick (USCD) on July 13th from 12-1:15 pm ET (That’s 5.00-6.15 pm in the UK). The trio of specialists will be sharing […]

In May The Sarcoma Patients Global Net (SPAGN) and New Horizon’s GIST conferences were held back to back in Dublin. SPAGN’s annual conference brings together sarcoma, GIST and desmoid patient groups, experts, researchers and pharma industry representatives from over 25 countries. The three-day conference focused on research and treatment, advocacy and capacity building. New Horizons […]

Date:  Wednesday 22nd February 2023 Venue: National Army Museum, Royal Hospital Rd, London, SW3 4HT  Aims: This study day will provide an overview of care of teenage and young adult cancer patients, and it will provide a unique opportunity to hear about the lived experience of teenage and young adults from the patient perspective with a […]

Date: Tuesday 26th September 2023 Venue: National Heart Lung Institute, Guy Scadding Building, Dovehouse, St, London SW 3 6 LY The aim of the conference is to provide a state of the art review of multidisciplinary sarcoma care with emphasis on what is new, clinically relevant and controversial in the managements of sarcomas. Topics will […]

Some while ago PAWS-GIST was very lucky to be awarded a “Tesco Bags of Help” grant.   Part of the grant has helped us to update our website which was originally implemented in 2014 and has been creaking at the seams…     We are delighted to be back on course, having convened three PAWS-GIST […]

We are delighted to launch GCUK’s educational video for GP’s and Primary Care Clinicians – “Diagnosing GIST”. Please see this at: Diagnosing GIST – Educational Video This training material has been developed by GP and Cancer Lead for Gloucestershire, Dr Sadaf Haque, working in collaboration with GIST Cancer UK and the UK’s leading GIST Sarcoma […]

In recent weeks, two of our GIST patient community have been featured in the news … PAWS-GIST patient Rachel Gilbert was diagnosed when she was 15 years old. In December, Rachel marked 20 years since her diagnosis with a daily video in the run up to her 20 year “cancerversary” to raise awareness of the […]