Treatment

Oncology specialist

  • Dr Ramesh Bulusu - Consultant Clinical Oncologist, Addenbrookes Hospital, Cambridge
  • Dr Ian Geh - Consultant Clinical Oncologist, Queen Elizabeth Hospital, Birmingham
  • Prof Bass Hassan - Professor of Medical Oncology, University of Oxford
  • Prof Ian Judson - Professor of Cancer Pharmacology, The Royal Marsden, London
  • Dr Robin Jones - Consutant Oncoogist, The Royal Marsden, London
  • Dr Charlotte Benson - Consultant Oncologist, The Royal Marsden, London
  • Dr Mike Leahy - Consultant Medical Oncologist, Christie Hospital, Manchester
  • Dr Beatrice Seddon - Consultant Clinical Oncologist, University College Hospital, London
  • Dr Pama Dileo - Consutant Oncologist, University College Hospital, London 
  • Dr Mark Verrill - Consultant Medical Oncologist, Northern Centre for Cancer Care, Newcastle

Request Mutational Testing

Ideally, mutational analysis will form part of the process of initial diagnosis for all GIST patients. It will identify specific mutations within the tumour that will inform treatment paths and prognosis. If no mutations in KIT / PGDRFA are found it will confirm Wild-type status. Further testing for Wild-type patients is necessary to identify specific sub-types that in turn inform treatment / prognosis and identify any (relatively small) risk of an inherited condition.

Donate Tissue

Access to primary clinical samples (tumour and matched normal blood) is vital to progress our understanding of rare tumours such as GIST. With your help we can set up a national collection of samples available to anyone with a good quality research proposal.

  • This bank is a valuable resource that will support GIST cancer research locally, nationally and internationally.
  • It will provide researchers with a diverse selection of high quality GIST tumour specimens and clinical data obtained by dedicated tumour bank staff who follow strict procedures and ethical guidelines.
  • Research will progress faster if there is a good supply of GIST tissue upon which to test potential treatments and develop new diagnostic tests.

Operating at The Royal Marsden in London, the GIST Tumour Bank will coordinate the collection, storage and distribution of a variety of paediatric and adult biospecimens including fresh, frozen and paraffin blocks in addition to blood samples and clinical data.

Working in collaboration with pathologists, medical oncologists, surgeons and other hospital personnel, specially trained staff will obtain patient consent, collect samples and assemble clinical information about each donor and their corresponding specimens.

Please assist in this research by sending samples to the National GIST biobank, see flyer below:

National GIST Tumour Bank Flyer (Pdf, 345K)

National GIST Tumour Bank Flyer

If you have Samples to Donate:

Please contact: Jayne Bressington  jayneandkim@aol.com for details of the consent and donation process.

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